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Remembering Ryan White
Ryan White. Most Michael Jackson fans will probably know this name from Michael's song "Gone Too Soon" which he dedicated to Ryan. But who really is Ryan White? How did Michael get to know this boy? You will get all answers right here.
Ryan White - Profile
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Awards:
- Poster Child of Indiana
- Hemophilia of Indiana
- The Young Hero Award
- Indiana Civil Liberties Award
- Sagamore of the Wabash Award
- Norman Vincent Peale Award
- A street in Washington, DC was named after him – Ryan White Circle
- Bob Hope Award – Spirit of America Award
Pictures:
Click on the picture to view it in full size.
Ryan White – Background Information
Ryan White grew up in Kokomo, Indiana (50 000 inhabitants) together with his younger sister Andrea and his mother Jeanne. When Ryan turned seven, his parents Jeanne and Wayne White got divorced.
Since his birth Ryan suffered from hereditary hemophilia. (Hemophilia is a group of hereditary genetic disorders that impair the body's ability to control blood clotting or coagulation. Mainly men are affected by hemophilia.)
He therefore had to undergo regular check-ups in the hospital and was sometimes receiving medical treatment because of some injuries. Also, he received blood transfusions and so-called factor 8 transfusions which improve the wound healing.
Due to one of those blood transfusions, Ryan got infected with HIV at the age of 13.
Examinations of blood donations were not a regular procedure back then (in 1984).
HIV
HIV (Human Immunodeficiency Virus) describes a virus that can lead to Aids. The virus is classified as a retrovirus and can not be extracted from a human body once this body has been infected. After a shorter or longer incubation period the infection leads to AIDS. Few HIV-infected persons (< 5%), so-called Long Term Non-Progressors, live with HIV for a long time before the illness breaks out.
In Germany, about 45.000 people are infected with HIV, among them approx. 34.000 men, 10.500 women and 400 children. Every year approx. 2400 people get infected with the HIV. [source: wikipedia]
AIDS
The abbreviation AIDS stands for Acquired Immune Deficiency Syndrome which sums up all symptoms and infections one will get when the immune system is damaged. This damage is caused by the human immunodeficiency virus (HIV). Aftereffects such as infections and tumors will sooner or later lead to death - no matter if the patient is under medical treatment or not.
In an Aids test doctors search the patients' blood for antibodies or parts of viruses. Even before some typical AIDS symptoms occur, patients will be treated with anti-viral pharmaceuticals which also increase expectancy of life. Liver failure is one of the most frequent causes of death, though. This is mainly due to hepatitis viruses but also an aftereffect of the pharmaceuticals AIDS patients are treated with. [source: wikipedia]
Ryan White's Book: My Own Story
The book "My Own Story", written by Ryan White and Ann Marie Cunningham, was published in August 1992 by the Signet publishing company.
Ryan began to write about his life quite early. When the impact of his desease was too heavy though, Ann Marie Cuningham took over the task.
In the following paragraphs you will be provided with excerpts from the book.
You will be informed about Ryan's close relationship with Michael Jackson and Elton John and you will get to know how Ryan got along with his illness.
Chapters:
- Prolog
- Chapter "Going to a better place" - Excerpt No. 1
- Chapter "Going to a better place" - Excerpt No. 2
- Chapter "Going to a better place" - Excerpt No. 3
- Epilog "Ryan's Final Illness and Funeral"
Prolog
There were so many TV lights in my eyes I couldn’t see the crowd. But I could hear them.
Thousands and thousands of people were clapping and cheering for me. And I hadn’t even opened my mouth yet!
Well, panic spread all over town anyway. Lot’s of times kids flattened themselves
against walls when I walked by. I heard kids telling Ryan White jokes. And grown
people passed along lies about how they’d seen me biting people, or spitting on
vegetables at the grocery store. I never did and I never would.
So here I was in New Orleans, giving a speech to this national convention of 10.000 teachers
about having AIDS. I wondered if Mr. Burkhaulter, my math teacher back at my old school,
was out there somewhere. I remembered how I couldn’t believe it when I’d heard him say on
TV that he didn’t want me in school - my favourite teacher!
„AIDS can destroy a family if you let it,“ I went on, „but luckily for my sister and me,
Mom taught us to keep going. She said, ‚Don’t give up, be proud of who you are
and never feel sorry for yourself.’“ |
Chapter "Going to a better place" - Excerpt No. 1
The one day Michael Jackson called me. Wow! I didn’t know why he had, except maybe because he’s from Indiana
too. He was in his car, he said. |
Chapter "Going to a better place" - Excerpt No. 2
On the day we were going to spend with Michael, a limo picked up Mom, Andrea, Heather, and me
very early at our hotel. After we climbed in, we were told that we couldn’t take any cameras with
us because we weren’t allowed to take pictures. About three hours later, about ten in the morning,
we drove up to the entrance of Neverland, Michael’s ranch. We had stop and let the security guards
check us out again. They escorted us to the main house. Michael was busy, we were told he’d be there
in about a half hour.
So we had some sodas and Heather, Andrea and I found a game room. The girls
started on the video games. I climbed into an airplane that rocked around just as
if it were really flying. All of a sudden, I caught a glimpse of Michael, playing along
with the girls. I kept trying to look around at him and say hello, but I was trapped!
I couldn’t figure out how to stop the plane. No one else could either, so finally Michael had to
stop laughing and unplug it!
Michael was wearing black pants and a red and black jacket and a black hat. He always wears my
favourite colours. He showed us around the main house. Just like me, his dream is to have kids,
so the house had a bedroom for a little boy and one for a little girl, plus a playroom with all
kinds of toys and arts and crafts – even a miniature merrygo-round. Just like me, he collects
things, especially dolls that are about three feet tall and look very lifelike. Mom loved them.
At lunch – chicken, corn on the cob, and pumpkin pie – we met Michael’s monkeys.
His famous one, Bubbles, wasn’t there, but the others made up for him. They all wore
diapers and T-shirts in different colours. They have their own babysitters, and they go
to school every day to learn manners. Their manners were pretty good! They hoped around and
played with our shoelaces while we ate. Every now and again Michael fed them a treat. I never
wanted to say goodbye to them.
At lunch – chicken, corn on the cob, and pumpkin pie – we met Michael’s monkeys.
His famous one, Bubbles, wasn’t there, but the others made up for him. They all wore
diapers and T-shirts in different colours. They have their own babysitters, and they go
to school every day to learn manners. Their manners were pretty good! They hoped around and
played with our shoelaces while we ate. Every now and again Michael fed them a treat. I never
wanted to say goodbye to them.
Michael smiled. He knew what she was thinking. He said that Mom was just like his mother.
So Mom got up the nerve to ask a mom-type question. „Michael,“ she said, „is it true that
you sleep in an oxygen tank?“ That’s something the tabloids have said about him.
When we caught up with Mom and the girls it was getting late. We had homemade pizza for
supper, and then it was time for us to drive back to L.A. I told Michael that I really,
really wanted a photo of us together. So he sent someone out for a Polaroid camera, and
drove down with us to the ranch’s entrance. Mom got some good shots, and then we said goodbye. |
Chapter "Going to a better place" - Excerpt No. 3
On bad days I had to rely on the phone for social life. Michael called to say he was busy
working on an album. He was in the studio every day. In between he had to pose for pictures.
Dr. Kleiman saw no reason why I couldn’t visit Michael. I love Christmas, but this year
I couldn’t wait for December 28, when I was taking off. Mum and I hung all our favourite
ornaments and watched Miracle on the 34th Street for the five hundredth time. I still loved
seeing the little girl who didn’t believe in Santa and how she found out that he’s real.
Andrea could care less about fussing over Christmas, the way Mom and I like to.
At least I left for L.A. in a new leather jacket that I thought looked pretty cool.
Michael’s security people met me in a limo. I called Mom from the limo to let her
know I had arrived okay. We picked up Michael at his apartment, and then headed south
for the ranch. Michael said he thought I looked better than I had on my last visit in June.
I hoped he was right. Maybe the jacket helped.
„I like your jacket,“ Michael told me, „but I want you to have a heavier one.“
The night we watched the new Indiana Jones movie, The Last Crusade. How lucky can you get,
I thought. The lines were too long to get in at home, but I was getting a private screening. |
Epilog "Ryan's Final Illness and Funeral"
For the next week Ryan remained unconscious, in critical condition in the intensive care
unit of Riley Hospital. Dr. Kleiman told Jeanne he was sure Ryan was not in pain.
But Ryan’s chances of pulling through, he said, were only ten percent. (...)
During the next days Ryan was never alone. Jeanne and Andrea remained with him
in the intensive care unit, listening to the pumping of his ventilator and
the beep of his heart monitor.
Elton John flew in and told Jeanne, „I’m here to help you.” He brought in bodyguards
who stood watch at the intensive care unit. (...)
One of Elton’s man duties was to keep track of all the phone messages and mail Ryan
and his family got. Some school sent homemade posters lettered with „Hang
in there, Ryan!“ and covered with kids’ signatures. Jeanne, Andrea, and Elton
hung them on the walls of Ryan’s room, along with quilts and pictures from well-wishers.
Ryan received so many flowers that his family and friends gave them away to other patients. (...)
There was no phone in Ryan’s room, but when Michael Jackson called, Elton
and Jeanne asked the hospital for a special hook-up. Michael would have two minutes to speak.
„Ryan,“ Elton said, „you can’t turn down a superstar like this.
I’m grade B compared to Michael.” He held the phone to Ryan’s ear so Michael
could encourage him. (...)
Dr. Kleiman said that Ryan was unaware of his surroundings, some
friends felt strongly that he was with them.
One evening in the hospital, Jeanne, Elton, Ryan’s grandparents, and Uncle
Tommy watched a short TV special on Ryan. At the end of the program, Jeanne saw Ryan
say he’d trade his fame for health „like that“ – snapping his fingers.
The following Saturday evening, when Ryan had been unconscious for a week,
Elton left the hospital briefly to join John Mellencamp and Jesse Jackson at
the fourth annual Farm Aid concert. On stage he announced, „This one’s for Ryan,“
and began singing „Candle In The Wind.“ Andrea and Heather were watching in the wings.
As the song ended and the crowd applauded, they waited for Elton, but he rushed past
them without saying a word. They knew he had been calling the hospital every fifteen
minutes, so Ryan must have gotten worse. The raced back to Riley.
Ryan died at 7:11 A.M. on April 8, 1990. It was Palm Sunday. Jeanne gave him one last
kiss and then turned off his guardian angel nightlight. Andrea hugged him for a
long time; she did not want to leave him by himself. So Laura told her, „I’ll stay
with him until he’s ready to go to the funeral home.” In a room near Ryan’s, Reverend
Probasco gathered Jeanne, Andrea, Ryan’s grandparents, his uncles, aunts, cousins, Elton,
Heather, and some other friends in circle. They clasped hands to pray and say goodbye to Ryan.
As soon as Michael Jackson arrived, he went straight to the Whites’ home in Cicero.
He was very upset that he hadn’t gotten there before Ryan died. He went up to Ryan’s
room, which was full of his collections, posters, and souvenirs, including his director’s
chair from the movie set. In it sat a giant toy gorilla that Ryan hat spotted in New
Orleans and that the National Education Association sent him. On the walls were Alyssa
Milano’s friendship bracelet, Max Headroom posters, and the hearts needlepointed by Kris,
Ryan’s old girlfriend in Kokomo. Hanging from the ceiling was a real parachute, a present
from Aunt Janet, and a thousand paper cranes – Japanese symbols of long life that an Indiana
school had folded for Ryan from coloured papers. In the closet was the heavy new leather jacket
Michael had wanted him to wear.
As Ryan had asked, he was dressed in his jeans and jean jacket, a surf shirt,
sneakers, his favourite reflecting glasses, and the watch Michael had given him. |
Author: Bina Hofberger
Translations: Gabriele "Maja" Hüben
Copyright: © MALIBU Michael Jackson & Family Fan Club
Contains extractions of "Ryan White: My Own Story"
Written by Ryan White and Ann Marie Cunningham
Published by Signet, an imprint of New American Library, a division of Penguin Group (USA) Inc.
Copyright by Jeanne White and Ann Marie Cunningham
All rights reserved

